Photographer Raises Awareness Of Kids With Rare Diseases In Striking Series
Ceridwen Hughes created a “The Rare Project” ― a series of photos and stories of kids with rare diseases. “I also wanted to inject some beau
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ROSE CAHALAN, Alcalde
- Sep 1, 2017
- 1 min
Parents of child with rare GM1 Lysosomal Storage Disease Lead Search for Treatment
When the Bragg family learned their daughter, Clara had GM1, a rare Lysosomal Storage Disease they, like many parents with children with rar
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Mathew Shanley, www.raredr.com
- Jul 16, 2017
- 1 min
Rare Disease Community Wins Again with 15th Annual Lift for Life
Uplifting Athletes, a nonprofit organization, aimed at inspiring hope for the rare disease community through sport, has a national network o
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MADISON MILLER, Bellevue Reporter
- Jun 26, 2017
- 1 min
Bellevue teen with cystic fibrosis receives scholarship
Vertex is a global biotechnical company that focuses on developing and commercializing medicines to aid people with serious diseases to lead
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