The MLD Foundation is a 501(c)(3) non-profit US tax-exempt organization. We were formed in May 2001 to serve families throughout the world affected by metachromatic leukodystrophy (MLD), a terminal genetic disease.
We C.A.R.E.™ ... Compassion for families, increasing Awareness, influencing & funding Research, and promoting Education for metachromatic leukodystrophy, a very rare terminal genetic neuro-metabolic disease where over half the cases affect infants. We are a small two person unsalaried organization with a global reach. We are active in MLD projects as well as rare disease policy and newborn screening.
Primary Contact Name: Dean Suhr
Contact Person Email: deansuhr@MLDfoundation.org
# of Hours: 20
When do you need the project to begin? : 09-01-2017