Succinic Semialdehyde Dehydrogenase Deficiency or SSADH is an extremely rare neurological disorder which is only shared by around 400 people world-wide, there is no known treatment.
Delayed gross motor development
Delayed mental development
Delayed fine motor skill development
Delayed speech and language development
Low Muscle Tone
Information on SSADH Organization: The organization has 5 Major Goals in mind:
1. Build a Network of patients, therapist, medical doctors and scientific researchers.
2. Raise money to fund research and treatments
3. Raise awareness in public for the ultra-rare enzymatic disorder.
4. Foster Research in diagnosis and therapeutic Treatment for SSADH.
There are two Projects (Note, projects 1 & 2 can be different individuals.
Move the site from its current host to a new, host which facilitates WordPress, site to be determined
Upgrade the primary site both visually and textually in WordPress format. The site must have the following functionality:
A. Process donations to include the following:
i. High level of web based security
ii. Process credit card transactions, both US and Non-US
iii. Process from the site to the bank account of the SSADH organization
iv. Issue tax free receipts
B. Collect and store contact information from visitors and donors on the site
C. Using the visitor and donor data send emails/newsletters
D. The SSADH staff should be able to create emails and newsletters
E. Good to have: Ability to integrate database with golf/fundraising data base
F. Connect golf/fundraising site to primary site
Primary Contact Name: Carolyn Hoffman
Contact Person Email: email@example.com