Pitt Hopkins UK is a newly registered charity. Our aims are to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, and to support and advocate for families with a child with PTHS, while delivering the latest information. Pitt Hopkins UK also hopes to fund future research in key areas which impact quality of life, such as, breathing anomalies that many of the children and adults exhibit.
There are 6 and we lack the skills to create a nifty mission statement. We'd really appreciate help as we have been getting nowhere with a statement for too long! Help with how to put over our vision and values would be great too!